Webinars & Presentations

Ardea presents “Beyond Patient Journals — Using Goal Attainment Scaling to Capture the Patient Voice in Developmental Epileptic Encephalopathies

November 10, 2021

Ardea's CEO, Chere Chapman participated in the DEE-P Connections workshop focused on the topic of "Assessing Status and Opportunities for Developing Outcome Measures for the Most Severely Affected Populations".


  • Gabi Conecker, Co-Founder of the International SCN8A Alliance and DEE-P Connections,
  • Terry Jo Bichell, Founder and Director of COMBINEDBrain
  • Chere Chapman, CEO Ardea Outcomes
  • Rehabilitation model for severe neurological impacts/adaptation to severe DEEs presented by Kennedy Krieger
  • Research on DEE Outcomes by Anne Berg
  • Telethon Kids work on DEE Outcomes presented by Jenny Downs